Today a social worker who looked not unlike Fran Healy came over to do my Fairer Charging Assessment, to work out if I have to pay for the care package they are sort of offering me.
When I say sort of, it's because it was organised in August, then delayed until a couple of letters were exchanged between my advocate and the department last month. They had the nerve to enquire as to how I was managing during the time that had elapsed (because of their own incompetence). Did I in fact need the two hours of care on offer? Well, sort of on offer, because nothing has happened yet. My advocate told them how my exhaustion levels were now so bad that I am resting most of the day just to get to school and cook a meal for my son each night. She thinks I should be getting five hours help a week. I'm due a rest now so I'll keep this brief.
The upshot of it all is that two weeks before Christmas I am suddenly faced with today's Fairer Charging Assessment, an OT assessment (this'll be the fourth, maybe fifth one?) and interviews for the PA post I can't fill until I get the direct payment money through...which was signed over in August but delayed due to 'a new computer system.' A social worker said recently they were supposed to review my care package in September, but that as care hadn't technically commenced a review would have to wait until there was, like, something to review.
Tired. Bed. But hey, at least Fran Healy popped by and he told me that no, I don't have to pay for my care package. And he's trying to get my rent sorted so I get full Discretionary Housing Benefit. And he thinks I should be on high rate care DLA, so he's going to look into that as well because then I get access to the Independent Living Fund. Did I mention he looked just like Fran Healy? :) sigh And he was really nice, as well as being good at his job. Truly a breath of fresh air.